For a special need child who can be autistic or having a severe speech delay ( just like Stony ) or having behavior issues, sensory issues, emotional outbursts etc. it is extremely important to help to make a strong link between school and home.
And autumn is here again… with all the bacterias and viruses..and dump weather here in England for sure. When autumn starts here in England we automatically start to worry for Stony again. He is catching everything much easier and even a tiny flue makes him devastated and knocked out for at least a week!
PWS children also have weakened immune system, tight airways and restrictive ventilatory impairment and respiratory muscle weakness. So when Stony catches a flu it makes him really bad and makes us so worried. Read More
Good news every one! We are almost there. Essentialis Announces the Dosing of the First Prader-Willi Syndrome Patients in a Long-Term Extension to Clinical Trial PC025.
Patients who completed the first two phases of clinical study PC025 are currently being enrolled in a 6-month open label extension. The objective of the extension is to document the long-term therapeutic benefits of DCCR, Essentialis’ lead drug, on hyperphagia, body fat, lean body mass, aggressive, threatening and destructive behaviors and on stamina. Read More
Stony has his special object and this is a 30 inches long soft English Sheep dog called “Fluffy. He has been carrying Fluffy with him everywhere for 2-3 years already. The doggy called “Fluffy”, since it is a really fluffy-shaggy soft toy dog.
He is really big 🙂 but he does not mind, he carries him everywhere we go.
Did you know that when you move your facial muscles to express emotions or to speak, the movements sparks a signal to the heart to regulate itself to match the face’s expression. If the facial movement is a smile, the brain recognizes a safe situation and inhibits or puts the break on fight-flight. The heart and organs can now operate in a slow, well-regulated manner. It a threat is perceived, the fight-flight system is quickly engaged, the face expresses shock, and social exchange releases the fight-flight break. The heart pumps faster, and organs are shut down to allow energy to move the arms and legs. Read More