About Us

Thank you for your support and sharing:
Dear Visitor! 
We are originally a Hungarian family located in Texas with our two amazing kids. Stony our son is 8 and Suzi our daughter is 6 years old.
We are ordinary people with an extraordinary life as our destiny has granted us a huge challenge for this life. 
Our son Stony was born with a rare genetic disorder called Prader-Willi Syndrome. 
Prader-Willi Syndrome is a complex genetic disorder what affects many part of the body and results in a number of physical, mental and behavioral problems. 
In 2010 we have become the delegates for the  International Prader Willi Syndrome Organization (IPWSO) for what we are very proud of.
Our world was completely changed when Stony was born. We live our life full of unusual, interesting, unexpected, awkward, hard or delightful situations what we have to solve on an every day basis using sometimes supernatural efforts and love. 
These situations make us laugh and make us cry but definitely make us live our life completely full and unusual. 
Stony our son has Prader-Willi Syndrome (PWS), prominent Sensory Processing Disorder (SPD) , Obsessive Compulsive Disorder (OCD), Severe to Moderate Learning Difficulties (SLD),  Challenging Behavior (CBF), Severe Speech delay, mild Autism like symptoms and mild mobility difficulties. He struggles with a prominent scoliosis and fights with his monster every day what is related to his food issues.
Stony is on a very strict special low carb diet. He eats gluten free, sugar free and low carbohydrates. 
This diet helps Stony enormously. Mentally, emotionally and physically. 
But we ourselves have also realized the huge beneficial and restorative effects of the low carb diet.
Low carb diets ( like Ketogenic and/Paleo diet) we think is a game-changer for PWS children as it is really able to reduce the triggers of  their hunger.
I am a CCC (Certified Chef the Cuisine) and love to cook!
We cook and bake every day as this factor is very important in Stony’s life so you can find a good selection of our best and well polished recipes here. 
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We have started our family blog to share others some moments and thoughts of our life and the challenges we face to for those who might like to laugh, cry, learn or wonder along with us! 🙂
Our intention also is to help other families in a similar situation to cope and manage but mostly to enjoy and love the every-day challenges and try to get out the best of this extraordinary life.